Living with Schizoaffective Disorder

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My direct flight from Bradley International (BDL) in Connecticut to Minneapolis (MSP) was cancelled the night before I was supposed to leave. The airline rerouted me through Atlanta (ATL), which is not my favorite airport but is my second most familiar, and I was already mentally adjusting for the longer day when I got to the counter at BDL the next afternoon to drop off my bag. The woman working the counter typed my name into her system, looked at her screen, adjusted her glasses, and said, “Looks like your flight isn’t until tomorrow.”

My first thought was that I needed to call my sister. She had dropped me at the curb less than ten minutes earlier and was probably still close enough to turn around and come back for me. I should catch her before she got too far. I started calculating, in the background, how long she had been driving and where she might be along the route home.

The phone in my hand clearly showed the flight was today. I did not fully register this, or I registered it and set it aside, because the woman at the counter had information from her system, and her system was authoritative in a way that my phone, for reasons I did not examine, was not. I handed her the phone. She adjusted her glasses again and looked at it. She set it down on her counter and typed something into her computer. Fifteen seconds passed. Then she said there must have been a glitch from the cancellation of my original flight that was throwing off my profile on her screen. My flight was in fact today. She apologized. She printed my boarding pass and tagged my bag and sent me on my way.

I made the flight. The layover in Atlanta was tight, twenty minutes to get from concourse E to concourse A, which in ATL is the difference between one end of the airport and approximately the other end of the airport. I rode the train between concourses. I ducked into a bathroom. I made it to my gate as my boarding group was being called, breathing harder than I would have liked, sliding into my seat with the particular quiet pride of someone who has just defeated a schedule that was trying to defeat him. I landed at MSP. My wife picked me at door four. The day ended the way travel days end: with the particular tiredness of having been through several time zones of sensory input without a net calorie of meaningful work.

I did not think about the BDL counter again until the following day, after I had gotten home and decompressed from the logistics of a hectic travel day and was sitting in my own quiet living room, replaying the day in the half-attentive way you replay days that have been too long.


What brought me back to it was not a memory. It was an absence.

I was running the day back through my head the way you do after a long travel day, the flight, the reroute, the sprint through ATL, the pride of making the tight connection, the drive home from MSP, all of it in fragments and loose order, not really analyzing anything, just letting the pieces pass. And when the BDL counter surfaced in the sequence, it did not come back as an annoyance or a close call. It came back as a thing I had not, in the moment, fully looked at. Something about it stopped me on the rewind. The woman’s glasses. The phone in my hand. The fifteen seconds while she typed. And the realization, arriving quietly in my living room hours after the fact, that the thing that had happened at the counter had not actually been the glitch and its correction. The thing that had happened had been what I did before the correction.

The part of the counter scene I want to describe is the part that did not happen.

Most travelers, told by a counter agent that their flight is tomorrow while holding a phone that says it is today, would feel a small, immediate pulse of resistance. A quiet no, that isn’t right. A moment of indignation or alarm or at least curiosity. Some instinct pushing back at the counter agent’s certainty with their own certainty. That instinct would not have to be loud. It would not have to be dramatic. It would just have to be present. A little internal friction at the boundary where their perception met someone else’s contradictory assertion.

I did not have that instinct. Not as a suppressed reaction I overrode, not as a fleeting flicker that got smoothed out in the time it took to respond. As a thing that simply was not there. The woman said tomorrow, and my mind moved directly to the logistics of tomorrow. Call my sister. Return to her house. Get a ride back to the airport in the morning. My processing skipped right past the question of whether she might be wrong and went straight to the practical adjustments required if I was. The phone in my hand did not enter the equation until I offered it to her, and even then I offered it more as a clerical gesture, an I’m sure it was my mistake but here is what I booked, than as evidence of my position in a disagreement.

There was no disagreement. There was no internal position. There was just the counter agent’s read and my immediate, reflexive acceptance of it.


This is the thing I am finding difficult to describe, because the thing itself is an absence and absences resist description. There was no moment of doubt. Doubt would imply the presence of a competing perception that I was weighing against the counter agent’s. There was no competing perception. I did not weigh anything. I simply defaulted, with the speed and smoothness of a worn groove, to the assumption that when my perception and someone else’s differed, the error was in mine.

I wrote in the essay Two Threads, about the watchdog process that runs alongside my main consciousness. The secondary thread whose job is to observe what the primary thread is doing and flag anything that looks like a problem. The watchdog cannot preempt the main thread. It does not have elevated privileges. It can only generate commentary, raise flags, leave notes for later review. It is the part of me that, during a psychotic episode, has sometimes managed to whisper this is not real even while the main thread is fully convinced that it is. It is the part of me that catches my mood drifting in spring and tells me to check the tripwires.

At the BDL counter, the watchdog was not running. Or it was running and did not flag the event, because the event did not register as anomalous. The main thread received an input, your flight is tomorrow, and produced an output, call my sister, recalculate the day, without any interrupt, any commentary, any subtitle track noting that the input was contradicted by evidence already in my own hand. The watchdog stayed silent because nothing in its rule set fired. The reflex was so well-worn that it qualified as ordinary cognition rather than something to be observed.

The watchdog came online later. Hours later, in my living room, replaying the day. That is what this essay is, structurally: the after-the-fact report of a watcher that woke up too late to intervene and could only annotate the event in the log. You did the thing again. You did it without noticing. Here is what it looked like. The commentary I am writing now is the commentary that was supposed to fire at the counter and did not. The essay is not the experience. The essay is the watchdog catching up.

Philosophers talk about something called qualia. The what-it-is-like-ness of experience. The redness of red. The painfulness of pain. The private, ineffable texture of what it is like to be a conscious thing having conscious experiences. There are long arguments about whether qualia exist and whether they can be explained in physical terms and whether your red is my red and whether a bat’s echolocation is a form of experience that any human could imaginatively access. I am not going to wade into those arguments. What I want to note is that the philosophical literature mostly assumes a certain kind of subject: a person whose qualia are theirs, who can report on them with reasonable confidence, who treats their own experience as the starting point for any further inquiry. Descartes could doubt everything except the act of his own doubting. I think, therefore I am., or as Decartes wrote, je pense, donc je suis The experience, at least, was unquestionable.

I am not that kind of subject. Or I am not that kind of subject reliably. My experiences are mine in the sense that no one else has access to them, but I do not grant them the authority that most people seem to grant their own. I carry a kind of background skepticism toward my own perception that is not a thought I have to think. It is a texture the perception arrives with. When I see a thing, the seeing comes pre-conceded. The what-it-is-like-ness of my experience includes a quiet, persistent undercurrent of it might not be like anything reliable.

This is not the dramatic, hallucinatory distrust you might associate with serious mental illness. I know what that is too, and it has shown up elsewhere in essays about wards and dreams and diagnoses. This is the ordinary version, the daily one, the one that does not rise to the level of anything worth reporting. The version where a woman adjusts her glasses and says your flight is tomorrow and you immediately begin calling your sister because your default, shaped by years of experience in which your perception was not always trustworthy, is to believe her. Not because you have decided to believe her. Because deciding was never part of the transaction.


The counter moment is the visible one. That is why I can describe it. It had enough contour to register after the fact. But the counter moment was not unusual. It was an instance of something that happens constantly, at a volume below the threshold of noticing, shaping my interactions with the world in ways I would only catch if I set up some kind of deliberate monitoring system, which I do not have and which would probably make me crazier than I already am.

In the day of travel between the BDL counter and my living room at home that night, I had probably a dozen similar moments that I only half caught. The gate agent who redirected me at ATL and whose redirection I followed without checking. The flight attendant who told me my tray table needed to be up when it already was, and I moved to raise it anyway before catching myself. The small, ambient corrections that travel generates constantly. I updated toward every one of them without examining whether they were correct, because examining was not part of the reflex. None of these moments were traumatic. None of them were even notable. They were just ordinary social deference, a thing every functional adult does to some degree, and so they blended into the general background of being a person in the world. But the texture underneath them was not quite ordinary deference. It was deference that arrived without the competing perception that would have made it a choice. I was not choosing to defer. I was just defaulting, before the choosing could happen.

The grocery store version of this is easy to miss. The airport version is slightly more visible, because airports are liminal places, designed to displace you from your routines and your anchors, and everyone experiences some heightened version of sensory uncertainty in them. Is that announcement for my flight? Is that gate change real? Is the person sitting across from me looking at me or at something behind me? The baseline anxiety of air travel is a shared reference point. Most travelers feel some version of it. Mine just has an extra half-turn on a dial that I did not install and cannot remove, the dial that governs how much authority I am willing to grant my own reading of a situation.


What I want to name, if I can, is the experience of having a perception that is missing the authority it is supposed to come with. Most people, I think, experience their perceptions as statements. This is what I see. This is what I hear. This is what I remember. My perceptions arrive as questions. Is this what I see? Is this what I hear? Is this what I remember? The interrogative is baked in. It is not something I add. It is part of the quale itself.

Nagel asked what it was like to be a bat. I will ask a smaller and weirder question: what is it like to be a person whose qualia are all, at a low hum, interrogative? A person whose experience of experiencing includes a quiet, automatic suspicion of the experience? I do not know how to answer except by writing things like this essay, which are attempts to describe a texture that does not have a common name. The philosophers do not quite cover it. The psychology of mental illness covers adjacent territory but usually in clinical language that flattens what it is trying to describe. Poor insight. Impaired reality testing. Reduced self-efficacy. None of those phrases catches the thing. They describe the thing from the outside, the way you might describe the color red to someone by reading them a wavelength number.

The best I can do is point at the counter scene and say: the thing that did not happen there, the resistance that was absent, the fifteen seconds of handing over my phone without any internal protest, is the thing I mean. That absence has a feel. The feel is what I am trying to name.


The woman at the BDL counter was gracious. She apologized for the glitch. She printed my boarding pass. She sent me on my way. I made my flight. I made my tight connection in Atlanta. I got home. None of this is remarkable, and I am aware as I write it that the essay does not have the shape of an event, because there was no event. There was a woman at a counter and a man with a phone and a fifteen-second correction of a small clerical error, and then there was a day of travel, and then there was a quiet living room and the half-attentive replay of the day, and somewhere in that replay the counter scene came back not as an annoyance or a close call but as a thing I had not, in the moment, fully looked at.

What I realized was not that I had almost missed my flight. I had not almost missed my flight. What I realized was that I had been willing to miss it, without protest, on the strength of someone else’s assertion that contradicted the evidence in my own hand, and that my willingness had not even registered as a feeling. It had just been the default. It had been the thing my mind did before my mind could notice it was doing anything.

I carry this calibration to the next counter. I will carry it to the one after that. I have spent years learning to recognize it, and the recognition does not correct it. The default still fires first. I still reach for my sister’s phone number before I reach for the evidence already in my hand. The best I have managed, and I think this might actually be the real trajectory of a life with this disorder, is the ability to notice the default after the fact and describe it honestly. Not to fix it. Not to override it. Just to see it for what it is.

What it is, as best as I can name it, is the particular quale of a perception that does not trust itself. An experience that arrives with a question mark already attached. A this is what I think I see, I guess, if you agree. It is not agony. It is not crisis. It is just the ordinary texture of moving through the world as someone whose instrument is known, by its user, to be slightly miscalibrated in a specific direction, and who has learned to travel anyway.

The flight was the day it was supposed to be. The phone in my hand had been right the entire time. The counter agent adjusted her glasses and corrected her system and sent me to the gate with an apology. And somewhere between BDL and ATL and MSP, carrying my bag through concourses I was too tired to fully see, I was also carrying the absence of the small internal no that most people would have felt at the counter and that I had not felt at all. The absence had no weight. That was the whole thing. It was so light I almost did not notice I was carrying it.

I am noticing now. That is the most honest ending I can give this. Not that I figured anything out. Just that I noticed, hours later, at home, in the quiet of a living room in Minnesota, the shape of an absence that had been shaping my day without leaving any other trace.

And I am sitting with the fact that this is what it is like to be me, and that it does not have a better name than the one I have just spent three thousand words failing to give it.

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