Living with Schizoaffective Disorder

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There was a chair beside my bed in the ICU. I know this because I have been told, and because the photographs from that period — the ones Melissa took on her phone, the ones I have seen only a handful of times because neither of us seeks them out — show it. A standard hospital chair, the kind with armrests and vinyl upholstery in a color that could be described as institutional teal. It reclines, somewhat. It is not designed for comfort. It is designed for presence — for the particular purpose of holding a person who needs to be near a bed but is not in the bed, who is there not as a patient but as a witness.

Melissa sat in that chair for forty-five days.

I was not aware of this. I was in a coma, my abdomen open, a machine breathing for me, my mind traveling through basements and golden cities and empty train depots while my body did the slow, mechanical work of deciding whether to survive. I was buried under junk in a house in Hibbing. I was drowning in a pool lined with hieroglyphs. I was searching an empty depot for someone who was not there, and the someone was her, and the panic of her absence was the first thing in any of the dreams that broke through the detachment and made me feel something that resembled urgency.

She was ten feet away. She was in the chair.

This is the gap I keep circling: the distance between my experience of those forty-five days and hers. My experience has been documented — I have written about the dreams, the thread that connected me to my body, the faceless paramedics and their single repeated promise. I have language for what happened to me in the coma because the coma gave me narrative, gave me architecture, gave me images I can describe with the precision of someone recounting events they witnessed. The mind, even at its most broken, is generous with material.

Melissa’s experience of those same forty-five days has no such architecture. There were no dreams for her, no surreal structures to organize the waiting into something with shape and meaning. There was the chair, and the bed, and the machines, and the doctors who came and went with information that was sometimes encouraging and sometimes not, and the drive from our home to the hospital and back, and the particular endurance required to sit beside a body that might not wake up and to return, the next day, to sit beside it again.

I do not know what she thought about during those hours. I have not asked, and she has not volunteered, and this silence between us on the subject is not avoidance — it is the particular quiet of two people who understand that some experiences cannot be translated across the gap between the person in the bed and the person in the chair, and who have decided, without discussion, that the gap is acceptable. That it is survivable. That it does not need to be closed in order to be acknowledged.


The first chair I am aware of — the first one I can place in time and space with any confidence — was in New Ulm.

I have written about this. The psychiatric ward, the fourth floor, the room with Gary and his metronome of snoring and farts. Melissa arrived when dinner was arriving. She sat in a chair that I assume was similar to every other visitor’s chair in every other hospital in the state of Minnesota — functional, cleanable, designed to communicate that your presence is permitted but not permanent. Visiting hours have boundaries. The chair has boundaries. You sit, you talk, you leave.

We talked. I do not remember what we said. I ate a turkey sandwich that I knew would wreck my stomach. She sat across from me in a locked psychiatric ward in a town neither of us had ever lived in, a hundred miles from home, and at some point visiting hours closed and she stood up from the chair and walked away.

Her sister was in the lobby. They had a two-hour drive back to St. Paul. It was winter in Minnesota, which means it was dark by late afternoon, which means the drive was dark, which means Melissa drove through the Minnesota night on a highway that unspooled behind her the same way it had unspooled behind the ambulance that brought me there, except in the opposite direction, toward a home that now contained one person instead of two.

I cried when she left. I have written about this. What I have not written about — what I cannot write about, not fully — is what the drive home was like for her. Whether she cried too, or whether she had moved past crying into the flat terrain beyond it, the place where the tears have been used up and what remains is just the drive and the dark and the highway and the fact that tomorrow she will have to do this again or choose not to. I was in bed 2 of room 428, vibrating with anxiety, listening to Gary snore, trying to navigate the bathroom situation. My experience of that evening has been catalogued and shaped into sentences. Hers has not, because hers is not mine to shape.

But I know the chair was there. And I know she got up from it, and walked through the locked ward door, and drove a hundred miles in the dark. And I know she came back.


The chairs I do not know about are the ones that take up the most space in my thinking.

Forty-five days in the ICU is not forty-five days of sitting. It is forty-five days of logistics, of phone calls, of conversations with doctors whose names she had to learn and whose terminology she had to absorb and whose cautious, calibrated updates she had to interpret for what they were actually saying underneath the clinical language. It is forty-five days of driving to and from the hospital. Of eating, or not eating. Of sleeping, or not sleeping. Of calling family members to give updates that she may not have fully understood herself, because the situation was evolving and the doctors were careful with their certainties and the prognosis shifted with each lab result, each vital sign, each morning that the body continued or did not continue its work of remaining viable.

There were decisions. I do not know which ones, or how many, or how large. I know that when a person is in a coma with an open abdomen and failing kidneys and a machine doing their breathing, someone has to make decisions on their behalf. Someone has to sign forms. Someone has to listen when the doctor says words like “decompressive laparotomy” and “abdominal compartment syndrome” and “approximately fifty percent” and then go home and come back the next day and sit in the chair again.

Melissa was that someone. She was over twenty years into a marriage with a man whose mind had already tried to kill him — in his twenties, more than once, and again at thirty-nine — and now his body had joined the effort, and she was sitting in an institutional teal chair making decisions about a person who could not make decisions for himself, and she was doing this every day, for forty-five days, while I dreamed about dog shows.

I do not write this to be glib. I write it because the contrast is the point — the gap between our experiences during those forty-five days is so vast it is almost comic. I was traveling through impossible architectures, held aloft by the narrative generosity of a dreaming mind, while she was navigating the real and unglamorous machinery of a medical crisis. I got basements full of junk and cities made of gold. She got a chair, and a parking ramp, and the particular weight of uncertainty that comes with watching someone you love hover at the boundary between alive and not alive.

My coma was, in its way, an adventure. Her vigil was work. And I do not know how to reconcile those two facts except to name them and let them sit beside each other, the way we sit beside each other now, twenty-four years in, carrying different versions of the same history.


There is a moment in The Depot — the coma dream about the train station — that I keep returning to when I think about the chair.

In the dream, I am standing in an empty depot. The clock on the wall displays time that is not time. My traveling companions are gone. The dog show has evaporated. And suddenly, with the force of a bell being struck, I realize that Melissa is not there. She is supposed to be there. Her absence is a rupture in how things are meant to be. And for the first time in any of the coma dreams, I panic.

I have described this as the moment that broke through the detachment — the moment that replaced neutral observation with something urgent, something that demanded action rather than witness. I searched the depot. I checked the benches. I called her name and the word dissolved in the silence.

What I did not understand then — what I could not have understood, because understanding requires a kind of consciousness I did not have access to — was that the panic in the dream was a mirror, held up to the wrong face. I was panicking because she was absent. But in the room with the machines and the chair, the situation was exactly reversed. She was present. I was the one who was gone. She was the one searching — not an empty depot, but a still face, a body on a ventilator, the monitors that translated vital signs into numbers she had learned to read — scanning for signs of arrival the way I scanned the depot for signs of her.

The dream gave me her experience, inverted. It let me feel, for a few minutes inside a coma, what it might be like to be the person in the chair. To wait for someone who is not there. To need them. To call their name into a silence that offers nothing back. And it did this while she sat ten feet away, holding my hand or not holding my hand, doing the particular nothing that constitutes a vigil.

I do not know if she was in the room at the exact moment I was searching the depot. The timing does not matter. What matters is that the dream knew, even when I did not, that the most important thing in any room I have ever occupied was not in the bed. It was in the chair.


She is in the other room right now.

I have written this sentence before, in Comfortable, where it served a different purpose — a marker of domestic peace, the ordinary fact of a shared house and a quiet evening. But it means something different here, in the context of chairs and vigils and the distance between the person in the bed and the person beside it.

The chair she sits in now is ours. It is in our living room, in our house, the house with the mortgage that is due on the first. It is comfortable in the way furniture becomes comfortable after years — shaped by the body it holds, softened where weight and time have done their patient work. It is not institutional teal. It does not recline reluctantly under fluorescent lights in a room that smells of antiseptic. It is a chair in a house, in a life that has settled into something that resembles, from most angles, the ordinary.

But it is still a chair, and she is still in it, and the act of being present — of remaining — is the same act she has been performing since New Ulm, since the ICU, since she first sat down beside a version of me that was broken in a way that required witness. The context has changed. The furniture has improved considerably. The fundamental thing has not.

Melissa does not write essays about what it was like to drive a hundred miles home from New Ulm in the dark, or to sit beside a coma patient for forty-five days, or to watch the person she married try to leave in his twenties and thirties and then, when the mind had exhausted its attempts, to watch his body try at forty. She carries these things the way she carries everything — privately, with an endurance I can observe but not replicate, with a patience I have tested far beyond any reasonable specification and that has held anyway. Held without cracking, or at least without cracking where I could see.

I write about threads. The thread that connected me to my body in the coma dreams, stretched and fraying, carrying more weight than it was designed for. The thread held — I have said this. It is the central fact of my survival.

But threads have two ends. And the end I have written about — the dreaming end, the traveling end, the end that moved through impossible architectures while the body lay still — is not the end that did the holding. The holding was done from the chair. The holding was done by the person who showed up every day to a room where the outcome was uncertain and the chair was uncomfortable and the work was nothing more or less than being there. Being present. Refusing to leave.

The thread held because someone held it.


I cannot write Melissa’s story. I have tried, in the spaces between these sentences, to imagine what those forty-five days looked like from the chair, and I cannot do it justice. Not because I lack imagination — my mind, as documented on this site, has no shortage of that particular resource — but because her experience is genuinely not mine to narrate. It belongs to her. It lives in the gap between the bed and the chair, and the gap is where it should stay.

What I can write is this: I am aware of the gap. I am aware that for every dream I have described, every ward I have documented, every episode and crisis and hospitalization that has become material for these essays, there was a person in a chair nearby whose experience of the same events constitutes a story I will never fully know. A story told by a narrator who has chosen not to tell it — at least not in words, at least not here.

She tells it in other ways. In the twenty-four years. In the chair in the other room. In the particular fact of still being here, in this house, with this person, after everything this person and his mind and his body have put her through. She tells it by staying, which is not a story in the conventional sense — no narrative arc, no climax, no resolution — but which is, I have come to understand, the most important story in any room I have ever occupied.

The chair in the ICU. The chair in New Ulm. The chairs in waiting rooms and doctors’ offices I do not know about. The chair in the living room, right now, tonight.

They are different chairs, in different rooms, in different years. But the person in them is the same, and what she is doing is the same, and the fact that she is still doing it — in a comfortable chair, in a comfortable house, in a life that has earned its comfort through means that were anything but — is not something I have found adequate language for, despite the fact that I have spent considerable effort on this site trying to find adequate language for difficult things.

Some things sit outside the reach of sentences. The person in the chair is one of them. I can describe the chair. I can describe the room. I can describe, with great specificity, what I was doing while she sat there — dreaming, breaking, being diagnosed, being opened, being closed, being maintained. But what she was doing — the interior of that waiting, the texture of that endurance, the particular weight of loving someone whose mind and body have both tried to leave — is hers. It has always been hers. And the most I can do, from this side of the gap, is to notice the chair, and to know who was in it, and to understand that the thread held because she did not let go.

She is in the other room. The house is mostly quiet save for the dogs doing dog things. And the distance between us is exactly the width of a hallway, which is the shortest distance it has been in a very long time.

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